What patient education should I provide regarding the management of Addison's disease and the importance of medication adherence?

Guideline-aligned answer with reasoning, red flags and references. Clinically reviewed by Dr Kola Tytler MBBS CertHE MBA MRCGP.

Posted: 16 August 2025Updated: 16 August 2025 Guideline-Aligned (High Confidence) Clinically Reviewed
Dr Kola Tytler MBBS CertHE MBA MRCGPClinical Lead • iatroX

Educate patients with Addison's disease on the importance of lifelong glucocorticoid replacement therapy, which is essential and life-saving during adrenal crisis .

Inform them about the need to take their medication regularly and as prescribed to prevent adrenal crisis and manage symptoms effectively .

Advise patients to carry an NHS Steroid Emergency Card or steroid treatment cards, and to be aware of how to access emergency medical help if needed .

Provide training on how to use emergency management kits, including intramuscular hydrocortisone injections, and ensure they understand when and how to administer these in an emergency .

Reinforce the importance of maintaining a good supply of medication, especially when travelling or moving, and checking expiry dates regularly .

Discuss sick-day rules with patients, emphasizing the need to increase glucocorticoid doses during periods of physiological or psychological stress, illness, or injury, and to seek medical advice when unwell .

Encourage patients to inform healthcare providers about their condition during pregnancy and to follow specific guidance on dose adjustments during pregnancy and stress .

Educational content only. Always verify information and use clinical judgement.